It’s a race against time for all FA sufferers and their families and it’s a race that is close to home for the owner of Element Surface Repair Solutions, Chris whose daughter Alex was diagnosed with Friedreich Ataxia when she was 5 years old. 

FA is a fatal, genetic, neurological disease affecting 1 in 30,000 people. FA initially causes a lack of coordination, slurred speech and difficulty walking, usually striking during childhood. As it progresses, FA causes complete incapacitation, vision, hearing and speech failure, combined with severe heart disease, scoliosis and diabetes. In later stages, patients usually suffer from cardiac failure 15 – 20 years after diagnosis. Intellect remains unimpaired. FA causes a greatly reduced life expectancy.

Chris hopes that she can create awareness for The Friedreich Ataxia Research Association (FARA Australasia) which is a not-for-profit organisation, whose sole purpose is to support research which will treat and cure Friedreich Ataxia (FA). 

Every dollar raised is put to work through funding research projects and trials.

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We invite you to follow the link to find out more about Friedreichs Ataxia visit www.fara.org.au

or HIT THE BIG BUTTON TO DONATE